Motherhood

what i’ve learned being a mom by Jaclyn Sison

Nothing is ever going to go as planned.

  This is probably the most accurate thing I could say. You could plan for a storm, and there's still going to be something that you end up forgetting. Somehow, Maverick always finds a way to put a dent in our plans when doing something out of routine. He's gotten a little better about adapting, but on the days he doesn't want to be flexible, Maverick is as stiff as a board. He's stuck in the thought process that the world is ending, so he might as well make the most of it. So, be prepared, always be prepared. FOR EVERYTHING

Mother's intuition for a sick baby is very accurate.

  I'd say 99% of the time, before I even took Maverick's temperature, I felt him and just had an inkling that he was sick. Don't ever take your intuition for granted, because you know your baby best. If your baby seems off in the slightest to you, where baby isn't playing, interacting, or eating like normal, then you KNOW something is off. Even if it looks normal to others, you know it's not normal for you.

Toddlers have their share of bad days too.

  We often see a toddler losing their cool in a store, and the poor parent having to deal with them. That's the thing "deal with them". We look at toddlers like they are "bad" when they have these meltdowns, but in reality, toddlers have bad days just like you and me. They just don't know how to manage their big emotions, so it comes out as a tantrum. We have to remember that our little kiddos are human and that they can have bad days, but that doesn't make them inherently bad.

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A routine can fix about 80% of your problems.

  I say about 80% because refer back to my first point, nothing ever goes as planned. Hahaha. But having a routine gives your toddler something to expect. We always do shower, dinner, walk, sleep. Every evening we've done that, and if we switch it up, Maverick ends up going to bed very fussy or is super hard to put down to begin with. When your toddler knows what to expect, transitions are a lot easier! No one likes a surprise. Occasional surprises are okay though when you're on vacation, or if Mickey Mouse is involved of course.

There's more to motherhood than wine memes.

  There is more to motherhood than bubble baths by yourself, without bath toys, and with a glass of wine in hand. I hate that as a society, we've resorted to wine as a coping mechanisms for mothers to feel like they can conquer the day. Since becoming sober, I've realized how much alcohol made it's way into our day to day life. At night, once Maverick is sleeping, we'd reach for a bottle of wine ASAP. Now that we don't do that, there's more to do with our time than to sit on the couch and drink. You don't need a wine glass to tell you that you made it through the day. Get more hobbies. (This sounds so condescending, but I promise that if you switch the bottle for a crochet needle, you'll have a blanket by Christmas. But in all seriousness, if you want to drink, go for it. But remember, you don't need it to prove your a tough mom that’s got it rough.)

crying at 3 am because I don't want to be a mom by Jaclyn Sison

The other night I woke up at my usual time (3 AM), and instead of forcing myself to lay in bed until I fell asleep again, I got up. I got up so I could read. I got up so I could journal. I got up because it’s the only time that Maverick is doing something where I don’t have to distract him, sleeping. But not this night. No, not this night. This night, Maverick had some major case of FOMO and decided he wanted to be WIDE AWAKE at 3 AM with mommy.

I lost my cool. I tried to feed him back to sleep and he wouldn’t even shut his eyes. “JUST GO TO SLEEP” I said sternly, as I shuffled him around my body to get him to go to sleep. Yelling at the baby wouldn’t make him go to sleep, I knew that… But I was frustrated. I get up at ungodly hours (literally the witching hour) to do stuff on my own, and I can’t even get that!

I was tired of being touched. I was tired of laying down doing nothing when Maverick was asleep. I was tired of being a parent. So I did the only thing I knew to do in that time, and that was cry. Cry until Sean woke up and took Maverick away from me. Cry until I felt better and calmed down. Cried until I realized Maverick didn’t have any sense in why I was crying…

Sometimes I don’t want to be a mom because it’s the hardest thing I’ve had to do. But that doesn’t mean I can just delete my son out of my life (like some people), and just pretend like every thing is peachy keen. I get up and love him because that’s what he needs from me. I love him cause he doesn’t know better. And even though this shit is ROUGH - I’ll always be here for him because I WANTED him. He owes me nothing because he is MY SON. And it’s my job to take care of him. That’s my baby.

But seriously… some alone time as being JAKKI is nice too, not just a shower by myself and calling it self care.

my son's a vip, "very immunocompromised person" by Jaclyn Sison

This past weekend, my son was admitted for high fevers again and they just wanted to do observation to make sure he didn’t have a seizure. This is the third time since April that he’s been admitted. All of this started back in December. We don’t know why we have a sick baby, but we do, and it’s tough.

Today I thought we were going to walk out of his appointment with a, “his WBCs look great! We’ll just monitor every other week or so to make sure it stays that way.” But we didn’t. Instead, we end up leaving with a VIP card and two lab draws per week until his next follow up. You don’t know how mad this makes me as a mom to know that some random doctor told me that his WBCs were good this weekend, and all of a sudden, my son’s got severe neutropenia and can cut the ER line with this VIP card? It makes me furious that they even released him from the hospital. To be fair, we were scolded for bringing him to the wrong Children’s hospital…

Now I see why…

This makes me feel like an inadequate parent sometimes. Way to make it about yourself, Jakki. I know, I know… I feel awful even saying it honestly, but it’s the truth! When Maverick is sick and I’m helpless, it’s hard to sit there and watch him go through it. It’s hard to watch him get poked and it’s hard to watch him be uncomfortable… I do appreciate everyone that tells me I’m some stellar mom for being able to support Maverick through all of it, but it doesn’t feel stellar.

I never thought that I’d have the kid that went through all of this treatment. It’s almost as if I were living in a movie, and every time we find out not-so-good news, it’s like a new plot twist episode. Sometimes it feels surreal that this is all happening. Like someone is playing a fucking joke on us… I know, weird.

But alas, here I am at 2 AM, researching viral infections that can suppress your immune system for months and cause severe neutropenia. Here I am researching CMV, EBV, HHV, all the hepatitis, and really not coming up with an answer. Nothing fits Maverick’s case yet, and it’s got me more worried. I probably should’ve just let the doctors do all the work… But I’m a nurse, and right now, the only person I’m interested in being a nurse for is my son.

To my dearest baby boy, by Jaclyn Sison

It hurts me to see you like this in the hospital. You know exactly what’s going to happen next when you see the nurses or the techs. You know that even though it doesn’t hurt, you still don’t like having your sleep interrupted for a blood pressure. You’ve been poked too many times by people with poor bedside manner and large enough egos to fill the state of Texas. And you’re tired.

Baby boy, mommy is tired, but I’m tired of seeing you in so much pain. I’m tired of seeing you suffer. It makes me feel like a bad mommy because I can’t protect you from any of the things you’re fighting. But I do promise you that no matter what happens, I’m going to be by your side every day. Me and daddy will never leave you alone to fend for yourself. We will be there to hold you and console you and tell you how much we admire and love you.

You are our fighter, Maverick. You are the strongest little guy I know. I love you to the moon and back my love.

Love always,

Mommy

Why children are more resilient than their parents by Jaclyn Sison

I’d be lying if I said I was doing better than my son right now, especially with all that’s been going on. To catch everyone up, my son has been admitted to the hospital twice now this year with severe neutropenia. (Neutropenia is an abnormally low count of the white blood cell neutrophils, that fight infection). It seems like the longest we’ve gone between ER/Urgent Care visits is 2.5 weeks. This all started in December on our trip back to Washington, and the fun hasn’t stopped yet.

Even though he has been the one receiving the treatment, it seems like I’m the one that’s super stressed about it. Even though I have taken care of sick kids before as a nurse, it’s definitely different when it’s your child. Maverick on the other hand is happy he gets chicken nuggets, doesn’t go to daycare, and gets to spend the day with mommy and daddy. I also think he likes that he gets dessert with literally every meal (okay, my kid LOVES jello and whipped cream apparently).

Kids are so resilient. Whatever is happening to them, it’s just in that moment. They don’t foresee the future yet and the long treatment plan ahead. When a provider says “I’m done”, it really means they’re done… until next time. Seeing my kid’s resiliency makes me want to be more of a fighter myself. Not just for me, but for him. If he can get through it, why can’t I? I mean, I’m not the one with the needles stabbing me, I’m just the one reassuring that it’ll be okay. So Mav, mommy’s going to fight for you since you’re fighting for all of us.